Fibrodysplasia ossificans progressiva The diagnosis of FOP is firmly established based on the combination of clinical and radiological criteria described below.
GENERAL QUESTIONS ABOUT FOP Fibrodysplasia Ossificans Progressiva (FOP) is a rare genetic condition in which the body makes extra bones in locations where bone should not form. Extra bone develops inside muscles, tendons, ligaments, and other connective tissues
How does a person get FOP? The genetics of Fibrodysplasia Ossificans Progressiva. A mutation of a single gene is likely responsible for all of the skeletal malformations of FOP. The goal of research is to find that gene and stop it from doing harm.
Treatment and Prevention FOP Links to websites which may include treatment, cures, diagnosis, prevention and support groupsLinks to websites which may include treatment, cures, diagnosis, prevention, support groups about Fibrodysplasia Ossificans Progressiva.
What is FOP? A Guidebook This guidebook is directed to the parents and families of children who have FOP, not because they were the only anticipated audience, but because too often in the past they have been the neglected audience unable to find anything to help them understand what was happening to their child.