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Home : Health/Medical/Dental : Major Diseases/Conditions : Fibrodysplasia Ossificans Progressiva

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The following links are in English

  • Fibrodysplasia ossificans progressiva
    The diagnosis of FOP is firmly established based on the combination of clinical and radiological criteria described below.

  • GENERAL QUESTIONS ABOUT FOP
    Fibrodysplasia Ossificans Progressiva (FOP) is a rare genetic condition in which the body makes extra bones in locations where bone should not form. Extra bone develops inside muscles, tendons, ligaments, and other connective tissues

  • How does a person get FOP?
    The genetics of Fibrodysplasia Ossificans Progressiva. A mutation of a single gene is likely responsible for all of the skeletal malformations of FOP. The goal of research is to find that gene and stop it from doing harm.

  • Treatment and Prevention FOP
    Links to websites which may include treatment, cures, diagnosis, prevention and support groupsLinks to websites which may include treatment, cures, diagnosis, prevention, support groups about Fibrodysplasia Ossificans Progressiva.

  • What is FOP? A Guidebook
    This guidebook is directed to the parents and families of children who have FOP, not because they were the only anticipated audience, but because too often in the past they have been the neglected audience unable to find anything to help them understand what was happening to their child.

  • What type of treatment is available for FOP?
    The treatment of FOP can ultimately be divided into two categories: 1) symptom-modifying, and 2) disease-modifying therapies.


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