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Home : Health/Medical/Dental : Major Diseases/Conditions : Prader-Willi Syndrome

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The following links are in English

  • Growth Hormone Treatment and Prader-Willi Syndrome
    . Based on current medical knowledge, the Scientific Advisory Board of the Prader-Willi Syndrome Association (USA) has drafted and approved this policy statement to guide health care providers in the use of GH treatment in patients with Prader-Willi syndrome (PWS).

  • Prader-Willi Alliance of New York
    The Prader-Willi Alliance of New York, Inc., a chapter of the Prader-Willi Syndrome Association (USA), represents the interests of individuals in New York State with Prader-Willi syndrome, their families, and the professionals who provide services to the Prader-Willi population.

  • Prader-Willi California Foundation
    The mission of the Prader-Willi California Foundation is to provide to parents and professionals a state network of information, advocacy, and support services to expressly meet the needs of children/adults with Prader-Willi Syndrome and their families.

  • Prader-Willi Syndrome
    Description and resources for Prader-Willi which is a a rare genetic disorder that is predominantly caused by the absence of genetic material on the long arm of the chromosome 15 contributed by the father.

  • Prader-Willi Syndrome
    PWS is a complex genetic disorder that includes short stature, mental retardation or learning disabilities, incomplete sexual development, characteristic behavior problems, low muscle tone, and an involuntary urge to eat constantly, which, coupled with a reduced need for calories, leads to obesity.

  • Prader-Willi Syndrome Association of Ohio
    PWSA (Ohio) is a chapter of PWSA (USA) and is a non-profit, tax-exempt organization dedicated to providing understanding and awareness of Prader-Willi syndrome, to supporting affected persons and families, to improving the quality of their lives, and to encouraging research into the causes, management, and cure of Prader-Willi syndrome

  • Prader-Willi Syndrome.-Health Care Guidelines
    Health Care Guidelines For Individuals With Prader-Willi Syndrome.The following guidelines are designed to be a resource for pediatricians, family practitioners, internists, geneticists, nurses, nutritionists, psychologists, allied health care providers, educators, and service agencies and as an aid to families and other caregivers.

  • The Prader-Willi Syndrome Association (USA).
    Many resources and lots of information from The Prader-Willi Syndrome Association which was organized in the United States in 1975 to serve as an international vehicle of communication about Prader-Willi syndrome (PWS), a genetically based developmental disability


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